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Jul 21, 2014

The Helmet Life - Max's Plagiocephaly Adventure


cranial helmet

Max's helmet journey has been going a lot better than we expected.  His first full day was a little rough but after that he adjusted to it quite well and has even been sleeping better at night.  His sisters think it is the cutest thing and love to help me decorate it with stickers every other week.  We have gone out in public quite a few times and we have had other people share there experiences with family members having to wear a helmet.  We've even had people ask us where we purchased it because they want one for their children or grandchildren for safety reasons.  ha ha ha  

Jun 26, 2014

Helmet Day

Today we picked up Max's helmet.  We spent a little over an hour in the office getting it to fit just right.  He was very fussy and wasn't happy with all the adjustments that needed to be made.  I think he was just sleepy.  By the end of our appointment he was a bit more calm and let me keep the helmet on him for the entire ride home.  The schedule is as follows:
Day 1:  Wear helmet on 3 separate occasions in 1 hour intervals.  Check for signs of redness that do not disappear in 30-45 minutes.
Day 2: Wear helmet 3 times but for 2 hours each time.  Again, check for signs of redness that do not disappear in 30-45 minutes.
Day 3: Wear 3 times a day but for 3 hours each time.  Again with the redness checks.
Day 4:  Day four begins full time use.  Helmet will be worn every day for approximately 22-23 hours each day.  Helmet should be removed every 3-4 hours to check skin for redness.   We will begin with him napping in the helmet before he begins sleeping in it overnight.  

plagiocephaly, cranial helmet, starband


As of last week Max's official measurements are:
Circumference: 42.8
M-L: 12.2
A-P: 14.7
CI: 82.9%
RT Ant to LT Post: 15.0
LT Ant to RT Post: 13.7
Asymmetry CV: 13

We go back one week from today for a checkup and then we will be going back monthly till he graduates.  Max is expected to be in his helmet for 3-6 months.  


Jun 21, 2014

Getting Plastered ... Max's Plagiocephaly Journey


On Tuesday, June 17th, we took Max to have the cast made for his cranial helmet.  This was the visit that made it all very real.  I couldn't believe this was really happening.  I know he will be fine and I know he will get used to his helmet but as his mother I can't help but feel guilty.  I know this was completely out of my control but my heart still hurts for him.  No matter what I will always feel like maybe I could have done something different while I was carrying him to prevent it from happening.  Silly, I know.   

Jun 20, 2014

Let Me Start From the Beginning... (Max's Plagiocephaly Journey)


The second they handed Max over to me I knew something wasn't quite right.  Don't get me wrong, I was completely elated to finally have this beautiful little boy in my arms and to me he was perfect but I knew to the rest of the world he wouldn't be.  I immediately noticed that the right side of his forehead bulged out a bit more than the rest.  Another feature that alarmed me was the raised, hard edge across the top of his head.  After bringing him home from the hospital we also noticed that his right ear was pushed forward and lower than the left and the top of his head had an unusual slant to it.   We met with his pediatrician who didn't seem very worried at the time and told us we would look into it more after his 2 month appointment.  I went home feeling better for a few days but then made another appointment to see his pediatrician again.  This time she said she noticed what we were concerned about and if we wanted to see a specialist she could give us some referrals.  While we waited for his appointment with a neurosurgeon we did what we could to try and fix the problem on our own.  We made sure he rested his head on a Boppy Noggin at all times, put him on his belly as much as possible, switched the sides he slept on in his crib and woke up many times in the middle of the night to turn his head off the "flat" side. 

Jun 19, 2014

Pink Blush / Pink Blush Maternity - A Fabulous Giveaway


You know what?  I'm a little upset these days.  Why, you ask?  I'll tell you.  It's because I am 5 months postpartum with my 5th and last child and I am just now finding out about the most fabulous and affordable online maternity store, Pink Blush Maternity.  It's not too often you find a site that sells stylish maternity clothes.  I would have given anything to have found this store a year ago.  But I can stop feeling sorry for myself because they also have an online sister shop called Pink Blush.  Yes!!!  I can still buy their fashionable and yet still affordable clothing in my current size (no, I'm not sharing that info with you).  I'm talking about prices between $20-$40 for some incredibly cute clothes! 

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